International Childhood Cancer Data Partnership




Hanna Jorgenson is a childhood cancer survivor and patient advocate. At the age of 16, she was diagnosed with Osteosarcoma and later with Li-Fraumeni syndrome, a cancer predisposition syndrome.

Now 30 years old, her cancer journey has fueled her passion for sharing her story and advocating for cancer patients and their families. Her unique and firsthand understanding of the challenges, uncertainties, and complexities that cancer patients and their families face has driven her passion for data sharing and collaboration to help facilitate research and improve outcomes for all those affected by cancer.

November 7 – 10.15 – 10.45am

Session: Keynote – Patient advocates

Role: Discussant

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